Showing posts with label Prayer. Show all posts
Showing posts with label Prayer. Show all posts

Friday, November 6, 2009

Like a breath of fresh air

Today has been a wonderful, lazy day. My friend Kristine is here from California and we spent the day just laughing and catching up. I forget how ridiculous and giddy we are until we are together again. She is an absolutely wonderful friend and I feel incredibly blessed to have her in my life.

During the time that Alaina was in the hospital, we were blown away by the love and generosity that was poured out on our little family. One of the most incredible things was done by Kris and her fiance Bryan. Because the majority of my maternity leave was eaten up by Alaina's NICU stay, I was only going to have a week or 2 home with her. She decided that it just wasn't acceptable that I only have a tiny amount of time with my child so she did what any good friend would do.

She threw us a party.

A ton of people that we have never met got together to celebrate my daughter. They donated money. They donated items to raffle off. They made us beautiful handmade gifts that we will cherish forever. A couple weeks after the party, I got a package with the presents and a check that enabled me to stay home for 5 weeks with my baby girl. It was one of the most incredible, generous things that anyone has ever done for us.

I can not express enough how grateful I am to her, and to all of the people that supported us during that season. You blessed us in ways that I can not even begin to describe.

Thank you.

Wednesday, September 23, 2009

The Sullivans

I just learned of this family recently and my heart is breaking for this new father and newborn baby girl who have just lost their wife and mother. I can not even begin to imagine what they are going through right now. Please keep Brady & Chloe in your prayers as they deal with their new reality.

Friday, July 31, 2009

Room-In

Last night I got the opportunity to room-in with my sweet girl at the hospital. They asked me to stay to see how she would do solely nursing through several hours. Needless to say, I jumped at the chance! It was so wonderful to get to sleep with her next to my bed.

I use the term 'sleep' loosely since there was absolutely no sleeping going on. Please keep this in mind when you're reading this post:)

Scotlon had to work but Hailey was so kind and stayed with me so I wasn't alone. She was a huge help and I could not have done it without her. Around 5:30, the machine had been beeping non-stop because the wires were twisted, Alaina wanted no part of nursing or the bottle I was trying to give her, I was running on about 90 minutes of sleep total, and I was so glad for another person in the room with me. Hailey kept me from going completely crazy and I will forever be grateful for her!

This morning after her 9:00 feeding the nurse pulled Alaina's feeding tube out. They want to observe her for 24 hours and if nothing crazy happens, Scotlon and I will room-in again tomorrow evening. Then on Sunday we will get to take our sweet daughter home! We are VERY excited and just a little nervous. Please pray that everything goes smoothly and that the next time I'm writing, it will be with my girl sitting next to me!

Love,
Stephanie

Thursday, July 30, 2009

No news is good news

Alaina has had a wonderful week! They were able to turn of her oxygen so she is breathing completely on her own now. Also, the doctors let me start trying to nurse 2-3 times a day if I'm there. If you have any mail to send I can get you the address since I never leave now:) I think that the nurses are probably getting tired of seeing me there!

We are getting really close to being able to take her home. The ONLY thing that we're waiting on is for her to take all her feeds without needing any through the feeding tube. After she does that for 24 hours, they'll pull the tube and then observe her for 24 hours and we're home free!!! She's doing better but she'll get a few down and then have to tube some so the clock starts over again. We're both so ready and anxious that it's hard to be patient during this last leg!

Please pray that she continues healing and that she is able to come home soon!

Love,
Stephanie

Thursday, July 23, 2009

I can't think of a witty title so we'll just go with 'Update'

Today has been a good day, full of rest for me. I spent a lot longer at the hospital yesterday and I think it wore me out more than I realized! It was a wonderful day though and I wouldn't have traded it. Aunt Jana, Aunt Hailey, Uncle Michael & Hannah all came to meet Alaina! Hannah had to wait outside because she is still a little young to visit, but they'll be spending a lot of time together in the near future.

Alaina also had a visit from our pastor and she decided to show off her ever-improving lung power for him! I can't blame her though since they were inserting a new feeding tube up her nose. Of course...if she would stop pulling it out they wouldn't have to put a new one in as often. I tried to tell her that but she refuses to listen. I never would have expected a stubborn child since Scotlon and I are so easy going and sweet...ha! In reality, I'm shocked that she's not more of a pill given the genes that she got:)

Last night when Scotlon got there to visit, she had managed to work her oxygen tube out and it was resting up on the bridge of her nose. The good news is that her stats were okay and she was breathing totally on her own for a few minutes. It's too much work for her to keep that up right now though so the nurse put new tape on the tube and we're hoping that she'll leave it alone.

Her feedings are going okay so far. She's not doing really fantastic but she's not doing really badly either. She gets a good rhythym going and tends to take about half the bottle before she needs a break. Once she sits up to burp, she gets tired and has no interest in working for the other half of the bottle. The physical therapist has reassured us that this is perfectly normal and that feedings are typically the last thing to master before kids leave. We are continuing to pray that she gets the hang of it. Once she gets it down a little better, they are going to let me try to nurse. I'm very hopeful that maybe by the weekend or first of next week, they'll let us try. Not that I don't love my pump, but feeding my kid has to be more rewarding than feeling like cattle...


Sometimes I get so tired and frustrated but then I look at that sweet face and it's totally worth it. Don't you just want to squeeze her???

I love that face too:)

Her new room in the Intermediate Care Unit. They didn't know her room was in ladybugs when they made the sign for her crib.

Aunt Jana, Aunt Hailey, Alaina & Me. We all look so much alike in this picture though none of us are actually related!


"Then they cried to the Lord
In their trouble and he saved them from their distress.
He sent forth his word and healed them; he rescued them from the grave.
Let them give thanks to the Lord for his unfailing love
and his wonderful deeds for men."
~Psalm 107:19-21
Love,
Stephanie

Tuesday, July 14, 2009

Picture Post

Here are some new pictures of my sweet girl! There's not much new to report right now as far as she's concerned. She is getting better slowly but surely and it's just going to take time for her lungs to heal after the trauma that they've been through. She's doing really well though and we're praying for the rest of her recovery to be speedy! We are both so ready to have our baby girl home with us. Thank you so much for your continued prayers and support. It means more to us than I can even begin to tell you.





I just love the back of her sweet head:)

Throwing a major tantrum!

Sleeping peacefully after finishing our tantrum.

Snuggled in daddy's arms and all is right with the world.

Love,

Stephanie

Sunday, July 12, 2009

Quick update

It's been a crazy couple of days so I'm just now getting on to post. Alaina is doing well and hanging in there. She is definitely a rotten little stinker though...she pulled her intubation tube out on Friday night. They watched her closely and decided that she didn't need to have a new one put in. She is now getting oxygen through a nasal tube. She is stable and just trying to work on continuing to heal. And, for tonight that's all I've got since the storm is getting really nasty here and I need to turn off the computer. I promise new pictures and more info soon.

Love,
Stephanie

Saturday, July 11, 2009

It will never lose it's power

Angie posted this over on her blog and it both made me laugh and brought tears to my eyes. God never fails to have me hear exactly what He wants me to and His methods never cease to amaze me. Please take time to watch the video; it's only a few minutes and I promise it will make you smile. Enjoy!



Love,
Stephanie

Monday, July 6, 2009

Holiday Weekend

This weekend was a little bit of a tough one for us. Alaina continues to be stable and is happy hanging out where she is. There have been no major leaps ahead in her progress and no major setbacks. We are thrilled of course with the fact that she is stable but frustrated as well at the lack of progress forward.

Saturday was her first holiday and it was really hard to not have her with us. She had a little outfit that we bought and she was supposed to be home with us wearing it. We were supposed to be enjoying the day with our new daughter, laughing and loving, not driving home from Eggleston's empty handed. We came in and just sat there together, trying to ignore all of the fireworks outside. Normally we love the fireworks but our hearts weren't in it this year. This was just not the way that it was supposed to be.

Please don't misunderstand, we are so happy that she's doing okay. We praise Jesus for all of the progress that she has made so far. We belive whole heartedly that He can heal our baby girl. We still have a long road ahead though and right now, we're both so exhausted and emotionally drained that we can't see straight.

We continue to ask for your prayers for Alaina to be healed. Will you also pray for strength and peace for Scotlon and I? We want to remain focused on the positive and not let anything steal our joy in the progress that Alaina has made. I've included the newest picture of our girl-her daddy brought in pink mittens instead of those yucky white hospital ones.


Matthew 11:28- "Come to me, all you who are weary and burdened, and I will give you rest."

Love,
Stephanie

Friday, July 3, 2009

Little Milestones

I promise one day that I'm going to get my post up before the very end of the day. Well, I promise to at least try to get it up before the end of the day.

Our visit with Alaina today was incredible. The paralytic that they had her on is continuing to work it's way out of her body and she's moving around a lot more. I put my finger under hers today and she flexed her fingers around it and held on. What a feeling to hold my daughters hand for the first time.

Today was actually full of firsts! We happened to be there during the time that they were taking her vitals and we got to help. I took her temperature and got to change her diaper. Which, by the way, is not as easy as it sounds when you're working around a lot of tubes. She put up with my shaking hands though and we got the job done. Speaking of diapers, she has already outgrown her newborn diapers and has moved to size one! We finally got a measurement of her length and she's 22 inches long. I can not believe what a big girl we have!

Her stats all look about the same today. We just got our bedtime report and she's stable and tucked in for the evening. Her blood pressure has been going up and down and they would like for it to be a little steadier. She's still on the nitric oxide along with oxygen and they want for her to come off of that completely before they transfer her back to Gainesville. Overall, she's continuing to improve but needs a lot more time to heal.

What a praise for her to have come this far! Less than a week ago we were facing very grim possibilities. The power of prayer is an amazing thing and 6 days later, here we are! We are very aware of the fact that things could still take a turn for the worse, but are choosing to trust that God has us exactly where we are supposed to be in this moment. We will continue to praise Him for all of her milestone's and lean on Him for strength when things aren't going as well.

Please continue to pray for Alaina's healing and for strength for Scotlon and I. We were talking earlier about how people without faith in God get through things like this. I can't even begin to imagine how much harder this would be if we didn't have hope that it was going to get better. If we didn't know for a fact that He is with her tonight, watching over her as she sleeps. Our sweet Jesus has been holding us every step of the way and I am so grateful that He is.

Psalm 106:1~ "Praise the LORD. Give thanks to the LORD, for he is good; his love endures forever."

Love,
Stephanie

Wednesday, July 1, 2009

Home

Hello all. I apologize for not getting this post up sooner. I had really great intentions this afternoon but found it difficult to type with my eyes closed. Who knew that pain medication made you so sleepy?

Alaina has had a good day and is doing well right now. They have stabalized her blood pressure and were able to turn down that particular medication. She's not weaned from it completely but it's half of what they were giving her previously. They had turned down her oxygen to 85% earlier today but have moved it back up to 95% now. We were a little concerned about that but the nurse explained that they will continue to move it back and forth while her lungs are getting stronger. They want her lungs to get used to working on their own but then give them time to rest until they are strong enough to be off of the additional oxygen completely.

Overall she is doing very well today. In fact, the transport team said that as soon as they were headed towards Atlanta, she started to improve. Apparently she just wanted to go on a road trip and see the city:) She's still in critical condition and we're far from out of the woods but it is such a relief to have some positive news to report.

I was discharged from the hospital this morning and am settled in at home. Walking through the door without my baby is the hardest thing I have ever done. I stood with Scotlon in her nursery and cried because she should have been there with us. I know that it's only a matter of time and she'll be here, it's just so surreal to be here without her right now. We're praying really, really hard that that day comes very soon. Until then I'm getting as much rest as possible so that I'll be all healed when she does come home.

A dear sister in Christ reminded me that I once posted this verse and I think it's perfect for today.

"My soul trusts in You; and in the shadow of Your wings I will make my refuge, until these calamities have passed by." Psalm 57:1

He is good ALL the time and we are resting in His love and peace tonight.

Love,
Stephanie

Tuesday, June 30, 2009

Jereiah 29:11

Hey guys...I am finally on here to post myself! It's been a whirlwind the last few days and I so appreciate Hailey posting on my behalf. She is the best friend a girl could ask for and I just love her. Last June she was posting for me after my ankle surgery so I think that we may just hibernate for the entire month next year!

I can honestly say that this has been the most exhasuting day of my life. If you told me a few months ago that I would have a child at Egleston's I would have looked at you like you were crazy. I had a perfect pregnancy and took for granted that we would have a normal delivery and be home with our girl in a couple days. On Friday night as we were headed to the hospital I made Scotlon take a picture of me going out the door (I actually made him take a few). I am grinning like an idiot and holding my belly because the next contraction had just started. I look back on those now and wish that I could go back and capture that light-hearted feeling for just a second. Tonight, I would settle for anything lighter than what I'm feeling now.

Alaina was transfered to the NICU at Egleston's tonight. Scotlon rode down there to meet the team and make sure that she got settled in okay. I just spoke to him and she is all tucked in with her new doctors and nurses. For the next 24 hours they plan on trying to just keep her stable and let her rest since she's been through a lot today. If all goes well tomorrow (or later today technically) they will discharge me from the hospital and I will be able to go down and see her. There are so many different variables that are playing a part in her health right now. For the next couple of days we are trying to get her well enough that she doesn't have to go on the ECMO machine. There's only a short window that they can introduce the ECMO though so they may have to just so she doesn't miss that window. It's so much information to take in and we're still trying to process everything.

Thank you all for your continued prayers and support. I am speechless at the number of people that are lifting up our sweet girl. Scotlon and I are overwhelmed and incredibly blessed by all of you. Please continue to pray for healing for Alaina and for strength & peace for us. We know that He has a plan and we will continue to follow Him faithfully.

Jeremiah 29:11~For I know the plans I have for you," declares the LORD, "plans to prosper you and not to harm you, plans to give you hope and a future.

Sweet Jesus, I ask that you put your healing touch on our baby girl. You are the Ultimate Physician and there is no docotor on this earth who can heal her the way that you can. Touch her with your hands and let her feel nothing but love pouring over her. We are placing her life in your hands, Lord.

Love,
Stephanie

Update on Alaina

I just spoke with Stephanie, & Alaina is moving from North Georgia Medical Center to Egleston Children's Hospital. Alaina has continued to be in stable condition since my last update, but her precious doctor feels that she will receive better care with his mentor in Atlanta.

Please be in prayer for the Angel Team from Egleston who are en route to fly Alaina to Atlanta, as well as the medical team that will be responsible for her care until she is able to come home with her Mommy & Daddy where she belongs.

We love you so much baby girl, please don't stop fighting.
Aunt Hailey

Monday, June 29, 2009

Update on Alaina

Michael, Hannah & I have just returned home from visiting Stephanie & Scotlon at the hospital. Alaina is stable for this very moment, but she is still a very, very sick little girl in desperate need of our diligent prayers.

Please continue to pray for her & her sweet Mommy & Daddy.

Many blessings for your kindness,
Hailey

Urgent Update on Alaina

I just spoke with Stephanie & Scotlon. Alaina's blood pressure is bottoming out. She is receiving an immediate blood transfusion in hopes that the extra blood with help stabilize her, but if this does not work, Alaina will be transported to Egleston Children's Hospital in Atlanta this evening.

Please, please pray for our sweet little girl's healing.

With much gratitude,
Hailey

Alaina Kristine Hughes




This is Stephanie's friend, Hailey. Stephanie asked if I would post a short update about Alaina's birth. I will not go into grave detail, because I am sure that once Stephanie regains her strength, she would love to share the entire birth story in her own words.

Alaina Kristine was born Saturday morning at 8:07 via emergency c-section because after laboring for several hours, her heartbeat kept fading from the fetal monitors. After she was born, the doctor found that she had been living in a severely significant amount of meconium for about a week. Apparently Stephanie's placenta had aged prematurely, causing Alaina a great deal of stress. The lack of amniotic fluid & oxygen in the placenta triggered Alaina's premature bowel movement, releasing the meconium. The doctor was able to remove a large amount of the meconium from Alaina's lungs, but the remainder of it is preventing her from breathing properly & has to be dissipated by her body. She is making small improvements, but she still has a long road of healing ahead of her. Fortunately, every report that we have received from her doctor since early Sunday morning has been encouraging.

Stephanie is doing well. I can not imagine the torment that she & Scotlon are facing. Alaina is in a zero-stimulus environment in the NICU where they are not allowed to hold her, touch her, or even speak to her. Thankfully, Scotlon was able to touch & visit with his daughter immediately after she was born. Stephanie was able to touch & visit with her daughter only minutes before she was taken to her postpartum room to recover.

Thank you for your prayers. I know that Stephanie & Scotlon are both extremely appreciative of every prayer, every thought & every kind word of encouragement. Please continue to pray for Alaina's & Stephanie's complete & speedy healing, as well as peace & wisdom for Stephanie & Scotlon during this terrifying time.

With much gratitude,
Hailey

Monday, June 15, 2009

Wonderful Weekend

This weekend was absolutely wonderful...uneventful, but wonderful! We got together with some good friends to celebrate a birthday, slept late, enjoyed some time at the pool and just took it easy. Yesterday afternoon we wandered the outlets and bought some cute things for our girl. We're trying so hard not to buy everything we see, but Carters was having a sale. It's hard to say no when everything at the already discounted outlet is even cheaper!

Mom Norton (Hailey's mama) came over last night to work on the nursery and we had a lot of fun painting together. She's doing a super cute border around the room that I can not wait to post pictures of. She is so talented and I love that Alaina is going to have a nursery that's unlike any other! Now if she would just get here so she could see it...

On that note, nothing new to report. We're down to only 12 days and I am SO ready for baby girl to get here. I'm doing everything that people tell you to scoot her along, walking, hanging out on my yoga ball, eating spicy foods, etc. Scotlon is really crossing his fingers that she's born on Fathers Day (6/21) which is next Sunday. Since there's supposed to be a full moon that day he may be on to something...I go back to the doctor on Wednesday afternoon so maybe I'll have something more to report then!

Wednesday, April 29, 2009

Childbirth Class:Week 3

I'm sad to say that our break from the crazy lady (as I affectionately call her) is over. Last night we focused on things the coaches can do during labor to help mom stay on track with her breathing. The first thing she mentioned is getting right in front of mom's face and telling her very firmly to focus. Riiiiiight. Knowing the gentle spirit that I am (ha!), I can tell you with confidence that this is not going to be a move that we use. My husband is smart enough to know that if he gets that close and starts barking orders, I'm liable to grab a handful of his hair and pull until I start to feel better. I love my sweetheart and I don't want to hurt him, but these are extreme circumstances people.

We were able to tour the hospital last night and see where we're going to be in a few weeks. It was pretty cool, though the highlight was when crazy lady decided to show us one of the antipartum rooms. Does she look on the sign to see if it's occupied?

Nope! She just walks right on in!

The room was definitely taken and I'm not sure mom was super thrilled to be barged in on.

On a serious note, I'm going to ask for your prayers. One of the girls in our class was admitted to the hospital and will be there until she delivers. She's only 31 weeks pregnant and they're trying to buy her a few more before they induce her. I cannot even begin to imagine how scared she is right now. Please pray for peace and healing for both her and the sweet boy she's carrying.

Thank you!

Thursday, March 19, 2009

Hallelujah!

Scotlon will be starting his new job on Monday! He just got the offer this morning and we are so very thrilled. It has been a long 8-weeks but God has been so faithful every step of the way. Thank you all so much for your constant prayers and support. Words can not express how grateful I am to you.

"Now glory be to God! By his mighty power at work within us, he is able to accomplish infinitely more than we would ever dare or ask or hope." - Eph. 3:20

Thursday, March 5, 2009

Abundant Blessings

I have been a terrible blogger lately. I can not believe that it has been over a month since I last posted! I kept meaning to get on and the time just flew by me. For the few of you who actually read this, I promise to try to do better in the future.

To give you a quick update, baby and I are still doing great. After much debate, we decided that Huey needed a more feminine name:) We finally settled on Alaina and love calling our daughter by her name! She's growing strong and we're over halfway there. Only 16 more weeks to go!

Scotlon is still out of work. It's been almost 6 weeks now and while we have some leads working, nothing definite yet. To add to that, the Department of Labor takes forever to approve unemployment when there's severance involved and we haven't seen the first check. For the last 4 weeks we've been surviving solely on my salary and on God's promise to provide. And has He ever...

I have a confession to make. We are terrible tithers. In the past we have always meant to tithe more consistently and have even had numerous discussions about it. However, we have never been consistent about following through. Until now. When Scotlon lost his job, it felt like the end of the world. When we calmed down we realized that God was using this period as a teaching opportunity. We were asking Him to provide for our needs and to bless us while being directly disobedient to what He was laying on our hearts. He made it abundantly clear that it was time for a change.

Can I tell you that He has provided in ways that we could never have imagined? He has strengthened our relationship in a time that we could have easily been at each others throats. He has poured out blessings from the most random places at exactly the time we need them. He has stretched our dollars further than we have ever been able to make them go on our own. It hasn't been easy and I don't expect that's going to change. But I would not trade the peace that has come from really trusting that He is in control for anything in the world.

"Do not be anxious about anything, but in everything, by prayer and petition, with thanksgiving, present your requests to God. And the peace of God, which transcends all understanding will guard your hearts and minds in Christ Jesus."
Phil. 4:6-7